Ok, here is the last and final update on the brace situation. I appreciate all of your feedback--It's been really helpful!
After a ton of stress and a few tears we have decided not to buy the brace ourselves. We will in fact be going through the state.
We have discussed this thoroughly with Leah's PT and OT and we all have decided that it will not make much of a difference right now. Leah is not walking yet, so that would mean that she would only be in the brace for an hour a day. The brace will only really "work" when Leah is more upright anyway. We are pretty convinced that Leah will be fully walking in the next month or so (she took 10 independent steps today!!!!), and we will get the brace from the state within 2 months. Our PT has pushed for us to get it within 2 months, rather then 4! We feel confident that our choice is the right one for us and for Leah. This was one of the hardest decisions we've had to make! It was a lot of money--but we would have found a way to make it work. We have decided that if in a month she is fully walking, then we can revisit buying the brace if we have not received it yet.
Leah's a superstar and is rocking out this taking steps thing! It's such a pleasure to see her take steps across the room! I took a video at PT today, but I waited until the end and she was not happy! She was crying while walking towards me! I'll try to get it up later!
Friday, January 9, 2009
Update...
Posted by Amanda at 12:52 PM
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5 comments:
Amanda, I am glad you were able to come to a decision. I know how hard it is but money is tight every where right now. How exciting about Leah taking 10 steps I can not wait to see the video:)
I know how hard a decision this was for you guys. But I think in cases like this you have to just trust those around you. If your PT says it won't make a difference right now. Might as well just let the state pay for it, save that money for a time when it wouldn't be covered. I hope it is two months. That sounds way more reasonable. I can't WAIT to see the walking video!!! She is totally a superstar!
Suzanne- You wrote:
"Might as well just let the state pay for it, save that money for a time when it wouldn't be covered."
That is EXACTLY what our PT said! She said that at some point we may not be covered by the state and then she would understand shelling out almost $800 for the brace, but right now we ARE covered, so we should take advantage of that.
Amanda, I was just thinking about this same thing before I read what you wrote. The brace will mostly benefit her when she is up and walking everywhere. So I think it is a great decision you have made. You might as well wait and let them pay for it. Keep rockin Leah!! Can't wait to see the video!!
I am excited to see the video, too! Glad you were able to make a decision.
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